fragilex.orgThe National Fragile X Foundation | Fragile X Syndrome

Shop Contact MENU MENU Understanding Fragile X Fragile X 101 Fragile X Syndrome Fragile X & Autism FXTAS FXPOI Other Premutation Conditions Living With Fragile X ❤️ COVID-19 Resources for coping during this challenging time. Newly Diagnosed Treatment and Intervention Life Strategies Community Support Fragile X Clinics Treatment Guidelines Our Research NFXF Research Fragile X Clinics Treatment Guidelines Participate in Research Get Involved Donate Help Raise Funds Other Ways to Give Donation Matching Tool International Fragile X Conference Advocate Participate in Research News & Events Blog Events Subscribe About Us Our mission & vision Our Team Our Programs Financials and Impact Report Search for: Understanding Fragile X Fragile X 101 Fragile X Syndrome Fragile X & Autism FXTAS FXPOI Other Premutation Conditions Living With Fragile X ❤️ COVID-19 Newly Diagnosed Treatment and Intervention Life Strategies Community Support Fragile X Clinics Treatment Guidelines Our Research NFXF Research Fragile X Clinics Treatment Guidelines Participate in Research Get Involved Donate Help Raise Funds Other Ways to Give Int’l Fragile X Conference Advocate Participate in Research Donation Matching Tool News & Events Blog Events Subscribe About Us Our Mission & Vision Our Team Our Programs Financials and Impact Report Contact Us Shop CART Shop Contact MENU MENU Understanding Fragile X Fragile X 101 Fragile X Syndrome Fragile X & Autism FXTAS FXPOI Other Premutation Conditions Living With Fragile X ❤️ COVID-19 Resources for coping during this challenging time. Newly Diagnosed Treatment and Intervention Life Strategies Community Support Fragile X Clinics Treatment Guidelines Our Research NFXF Research Fragile X Clinics Treatment Guidelines Participate in Research Get Involved Donate Help Raise Funds Other Ways to Give Donation Matching Tool International Fragile X Conference Advocate Participate in Research News & Events Blog Events Subscribe About Us Our mission & vision Our Team Our Programs Financials and Impact Report Search for: Understanding Fragile X Fragile X 101 Fragile X Syndrome Fragile X & Autism FXTAS FXPOI Other Premutation Conditions Living With Fragile X ❤️ COVID-19 Newly Diagnosed Treatment and Intervention Life Strategies Community Support Fragile X Clinics Treatment Guidelines Our Research NFXF Research Fragile X Clinics Treatment Guidelines Participate in Research Get Involved Donate Help Raise Funds Other Ways to Give Int’l Fragile X Conference Advocate Participate in Research Donation Matching Tool News & Events Blog Events Subscribe About Us Our Mission & Vision Our Team Our Programs Financials and Impact Report Contact Us Shop CART The National Fragile X Foundation The National Fragile X Foundation The 17th NFXF International Fragile X Conference Virtual Series MAY 29–30 | JUN 27 | JUL 22 Yes, the conference is happening! Register now for dates in May, June & July. May 29-30 — Fragile X Syndrome Across the Lifespan June 27— Premutation Carrier Issues July 22— Fragile X Research Roundup Learn More Yes, the conference is happening! Register now for dates in May, June & July. May 29-30 — Fragile X Syndrome Across the Lifespan June 27— Premutation Carrier Issues July 22— Fragile X Research Roundup Learn More 20 CHAPTERS + 32 CLINICS + 20,000 FAMILIES strong What Is Fragile X Syndrome? Fragile X syndrome (FXS) is a genetic condition that causes intellectual disability, behavioral and learning challenges, and various physical characteristics. Though FXS occurs in both genders, males are more frequently affected than females, and generally with greater severity. Life expectancy is not affected in people with FXS because there are usually no life-threatening health concerns associated with the condition. We provide unwavering support for every family affected by Fragile X, while relentlessly pursuing a cure. Explore Fragile X Learn About Fragile X Learn about Fragile X and read in-depth articles for daily living strategies. Join The Community Find events and local community groups near you. Discover Research Find a clinic and get involved in current research projects. Spotlight: Riley Lynch Spotlight: Riley Lynch Riley was born with Fragile X, and when he was first diagnosed, his parents were told he would never walk, talk, or do much of anything. Today, Riley is 10 years old, a wonderful student, and is making his own dream come true: his dream of becoming an astronaut. Read Riley's Story Our Mission Awareness - To increase public and professional awareness of Fragile X to influence public policy, support legislative advocacy, and increase funding for research. Research - To fund and facilitate research that drives scientific and medical advances toward effective treatments and a cure. Community - To assist and educate individuals and families living with Fragile X in all stages of life, through outreach and personal support. Make An Impact Interested in connecting with a larger community? We’d love to hear from you! Check out the number of ways to get involved. ADVOCACY ADVOCACY FUNDRAISE FUNDRAISE CONNECT LOCALLY CONNECT LOCALLY VOLUNTEER VOLUNTEER News and Features News and Features See all stories Join the NFXF 2020 Virtual Graduation Celebration 05/30/20 Sophia James to Deliver Keynote at the 17th NFXF International Fragile X Conference 05/19/20 American Idol’s Sophia James Introduces Her Brother James — Who Has FXS — to 8 Million Viewers 05/12/20 Female Power to Fight COVID-19 with Marcia Braden 05/08/20 A COVID-19 Social Story from NFXF 04/27/20 Upcoming Events Upcoming Events Jan 01 Premutation Carrier Issues Thursday, 01/01 Mar 07 FRAXSOCAL's Shamrock Shake- 8th Annual 5K for Fragile X San Dimas Saturday, 03/07 Mar 18 Pizza Ranch Fundraiser Waukee, IA Wednesday, 03/18 Mar 19 Dine Out for Fragile X at Jason's Deli Cincinnati, OH Thursday, 03/19 Mar 21 FORE! Fragile X 2020 Scotsdale, AZ Saturday, 03/21 Mar 24 Virtual Fragile X Moms Night Tuesday, 03/24 Mar 25 Western Mass Chapter Group Meeting Wednesday, 03/25 Apr 06 Facebook Live Q&A With Jayne Monday, 04/06 May 29 Fragile X Syndrome Across the Lifespan — Fragile X Conference Virtual Series Friday, 05/29 Jun 27 Premutation Carrier Issues — Fragile X Conference Virtual Series Saturday, 06/27 Jul 22 Fragile X Research Roundup | Fragile X Virtual Series Wednesday, 07/22 Aug 08 Bike To X Out Fragile X 2020 Des Moines Saturday, 08/08 Sep 26 All In for Fragile X Casino Night Birmingham, AL Saturday, 09/26 See all Events About The National Fragile X Foundation supports families living with Fragile X through community, awareness and education, and research. We provide help for today and hope for tomorrow. Together we can do more. Learn more about how we can help. Guidestar Gold Seal of Transparency Charity Navigator Four Star Charity Financials & Annual Impact Report Other Ways to Give Donor Privacy Policy Our Programs FORWARD Registry & Database NFXF Biobank™ Community Support Network Sibling & Self-Advocate Network NFXF International Conference NFXF Clinical & Research Consortium Popular Topics Find a Fragile X Clinic Search Clinical Trials Resources by Age Group Consensus Documents Newly Diagnosed Understanding Fragile X Living With Fragile X Social Media Channels Facebook Twitter Instagram Linkedin YouTube More Ways to Connect Our Blog Monthly Webinars Events Join Our Advocacy Team Int’l Family Support Networks NFXF Community Support Network Find a Local NFXF Chapter Join Our Mailing List 1861 International Drive Suite 200, McLean, VA 22102, (800) 688-8765 Privacy Policy | Powered by PRI Copyright © 2020 National Fragile X Foundation Select Language Arabic Chinese (Simplified) Dutch English French German Italian Pashto Portuguese Russian Spanish Turkish Vietnamese Our Conference this year is now a Virtual Series, starting today! May 29-30! These first two days cover Fragile X syndrome — with over 40 live and on-demand sessio...